COO Children

11-month-old Yu Ting (Emily) was born with bladder exstrophy.  COO's exstrophy team consisting of 2 orthopedic surgeons, 2 anaesthesiologists, pediatric surgeon and a pediatric urologist spent 10 hours operating on her on February 26th, 2011 on her exstrophy closure.  She was put in a hip spica to restrict her lower body movement to enable her hip bones to fuse together, and is now back in Beijing.

She spent her first birthday in Hong Kong and a group of volunteers threw a birthday party for her in the hospital.

6-year-old Minghui from Qinghai’s Xining Children Welfare Institute suffers from urine and fecal incontinence after surgery of myelomeningocele repair in China. He was sent to us by Christian Action for investigations and possible surgery. He was found to have severe tethered cord which needs untethering surgery in the future. He was also treated for swine flu while in Hong Kong.

12-year-old Zhiruo from Qinghai’s Xining Children Welfare Institute suffers from neurogenic bladder since birth. Having received bladder operation from Hong Kong under the care of HA hospital in 2003, she was sent to COO by Christian Action for investigation early January. Four doctors were involved in reviewing her case and the recommendation was for her caretaker to closely monitor her renal functions, and have her continue her catheterization with bowel washout.

Photo taken at MedArt office in January.    

Ren Ai, an orphan found abandoned by a Catholic farmer, was placed in New Hope Foundation Special Care Unit, Beijing, China to be better cared for.  She was born with cloacal, a defect in which the rectum, vagina and urinary tract are fused together into a single common channel. It would need complex surgery and reconstruction to enable normal urinary tract and bowel functions. She received life changing surgery with two colostomies which lasted for 14 hours on the 14th of October and had an amazingly fast recovery.  She was walking around only 5 days after surgery.  On the 8th of December, Ai received her colostomies closure, and was able to return to Beijing before Christmas. 

San Ping, an orphan from New Hope Foundation, Beijing, China, was born with impeforate anus, rectovaginal fistula, right cleft lip and palate.  She came to Hong Kong for surgery during October.  After a series of surgeries for impeforate anus, rectovaginal fistula and cleft lip, San Ping had a fast recovery and was well enough to return to Beijing early November.  She still needs surgery for her cleft palate in the future.

Yong Xin, a 7-year-old girl, an orphan from LiMing Family Home, Hebei, China, suffers from failed cloacal exstrophy closure.  While in Hong Kong, she had surgery to redirect her urine as well as vaginoplasty and umbilicoplasty to improve her current condition.                                     
 Yongxin recovering from surgery, with her new toy     










  On day of Discharge

11 year old Guo Hua, an orphan from Mother's Love Orphanage, China, was born with male pseudohermaphroditism and perineal hypospadias.  He came to Hong Kong for cystoscopy and laproscopic surgery to remove his mullerian remnants in September.  He will need to return to Hong Kong for hypospadias repair at a later stage. 

Five month old Ma Tai suffers from multiple problems of imperforate anus, meningocele and bladder exstrophy. He is an orphan from Shanxi Orphanage, China.  Having received failed attempts on his exstrophy repair, he came to Hong Kong in March for investigations and assessments.  During his stay here, he had his k-wire removed by orthopedic surgeon.  A detailed treatment and surgery plan was sent to his orphanage for his next trip to Hong Kong.

Feili is an orphan boy from Zhao Xian County Light of Hope Christian Orphanage, China.  He suffers from Cryptorchid left testis, perineal hypospaias and large utricle.  He was admitted to Hong Kong Adventist Hospital during the latter part of August for his first stage surgery.  He has subsequently returned to his orphange awaiting his second stage surgery.
Here is updated news from Zhaoxian Orphanage on Nov 24th:

" Please forward the good news to Dr. Ngan so he can rejoice in Feili's recovery.

After Feili's operation in Hong Kong, Feili's character has gone through vast changes - his male character is much more evident,  and he has become a bright and happy child.  Even when he trips and falls, he does not cry easily.  He likes to sing along loudly when watching television.  He is quite a cheeky child, and enjoys being at the center of a picture shooting, blocking all other children.

Since his return from the operation, he has had very good health, and is growing to be very sturdy
-------- Unlike before where one cough from Feili would make the teacher very nervous and would be brought to a hospital immediately.
----------Thank the Lord's grace.
----------Thanks to Dr. Ngan's operation which brings about all these changes in Feili.
----------All the children want to thank Dr. NGAN for helping their brother with surgery, making their younger brother into a healthier child.
---------Thank you aunt Leung for your love. Thank all of you for your love.
          
希望儿童之家
living hope Christian Orphanage
中国 河北省石家庄市赵县城内贡院街120号
邮政编码：051530
Tel:0311-8492 3922
Fax:0311-8492 3922"

Feili (March 2010) Celebrating his 2nd Birthday at his orphanage          
                           










Feili (Sep 2010) at MedArt Office After Surgery
 
            

Bao Bao had intestinal obstruction when he was one month old and was sent to Shanghai for treatment.  He was diagnosed to have Hirschprung's Disease which is a blockage of the large intestine due to improper muscle movement in the bowel.  He received surgery which removed his entire colon.  Recently, one-and-a-half year old Bao Bao has recurrent urinary tract infection due to his phimosis.  He came to Hong Kong for operation and is now fine for adoption.

Bao Bao in Hong Kong (June 2010)                           Bao Bao in Beijing (November 2010)
                                        

He Ping had his colostomy (a surgical procedure that brings the end of the large intestine through the abdominal wall so he can drain stools into a bag which is attached to the abdomen) when he was picked up in late November, 2007. He also received an anoplasty (reconstructive surgery on the anus) in Shanxi. Later, he developed fecal urinary fistula and had a repair done in Shanghai. However, post-operation examination showed continual urinary fecal fistula with his orphanage director reporting notice of urine from anus and feces from penis. He was brought to Suzhou for consultation and assessment. Doctors reviewed all his surgical records, and repeated a cystogram and RUG under general anesthesia to examine his fistula. COO and Suzhou doctors both reached a consensus to perform a repeated anoplasty at COO’s next visit.

Little Shun Jiang from Xinyang Orphange was only 15 days old when he went to Suzhou to receive his myelomeningocele closure surgery. He recovered well and was able to return to his orphanage on the 2nd of May.

Zan Zi was 7 month old while he was brought to Suzhou to receive his second surgery relating to his lumbar myelomeningocele. Clinical record indicated that his myelomeningocele had ruptured 2 weeks after his birth, and Zan Zi received an emergency repair in Luoyang on 13/10/2009. Doctors found that his Lower limb movements appeared satisfactory but there were marked urine and fecal incontinence. MRI on his spine also showed severe tethering (stuck-down). A CT of the brain also showed moderate hydrocephalus with large head and a bulging fontanelle. Regardless of all the procedures he had to endure, he remained a cheerful baby, and was able to travel back to his orphanage on the 2nd of May.

4-month old Er Wei was brought into Luoyang orphanage when she was only 6 days old. She was born with a lumbar myelomeningocele at her lower spine. COO’s medical outreach team of doctors together with Suzhou doctors operated on her on the 17th of April. Due to post-surgery complications, she had to remain in Suzhou until the 8th of June before she could return to her orphanage.

Enjia, who was born with no ear, was abandoned to die in a box. With the funds from China Orphans Outreach, she was fitted with a hearing aid headband in November 2007 which turned a new chapter in her silent world. Since then, she has been receiving lessons from speech therapists and can pronounce words now. She has been back in Hong Kong for evaluation by ENT specialist and plastic surgeon for long-term hearing aid and possibility of artificial ears. However, we received news from Shijiazhuang orphanage, China that her hearing aid broke last December and she was back in her world of silence. MedArt paid for a new hearing aid for her and here are the feedbacks from volunteers who visited her. 

“She (Enjia) was in a bit of shock when the hearing aid broke and she was thrown back to the world of silence. She lost weight. She was silent. She was confused. 2 weeks ago, your "gift of hearing" arrived safely in ZX through hand-carry messengers and you should see the smile on Jia Jia's face!” 

From Philip (Outreach Team of the Community Church Hong Kong):
“ A group of us just came back from the Easter Orphanage Visit at Shijiazhuang. When a colleague of mine asked me how was the trip, i immediately thought of En Jia.

I have seen En Jia so many many times previously, in Shijiazhuang as well as in Hong Kong. Before, looking at her, I only sensed uncertainty and sadness. So it was absolutely a big pleasant surprise for me this Easter to see her always wearing a smile on her face and being so affectionate. Was it the same child, i asked. Thanks for your love, kindness and generosity in caring for En Jia and your gift of the new hearing aid to her - they all make a huge difference. “

Jingtai came to Hong Kong when he was 6 months old to receive his 13-hour exstrophy bladder closure surgery in March 2009. He was back in Hong Kong this month to have his bladder assessed. His fluoroscopic screening of his urinary system showed that he had a stone in his bladder, and reflux on both sides. During surgery, however, doctors found that the posterior wall of the urethra was jammed by a horizontal calculus wrapping around a suture from previous surgery and the doctors were unable to remove the suture. Another calculus wrapped around a suture to the left side of the bladder neck was also found with the largest calculus (2.1x1.8cm) floating in the bladder. It took the surgeons almost 5 hours to clear the bladder of calculus. (Pictured on left with COO's anesthesiologist).

Daohua was born with lumbar myelomeningocele (protrution of meningeal and spinal cord tissue through a bony defect in the vertebra) with hydrocephalus (abnormal buildup of fluid in the brain). She received her closure and shunt insertion surgery last November in Suzhou by COO doctors. Subsequently, she returned to Beijing for full recovery. In May, she came to Hong Kong for assessment of her bladder function. Her cystoscopy and urodynamic studies showed that her bladder function is normal. However, she arrived with a viral upper respiratory tract infection, and while in the hospital, she was treated for her symptoms. COO’s neurosurgeon also took this opportunity to assess her shunt. Examinations showed that the shunt was outgrown and as there was no evidence of active hydrocephalus, the doctor removed her shunt. It was also discovered that Daohua had Chiarri II malformation (congenital malformations of brain stems, cerebellum, upper spinal cord and surrounding bony structures) with severe brain stem compression and required immediate surgery. Surgical correction was performed and she appeared much more alert and mobile than when she first arrived. She is now back in Beijing. (Pictured here with MedArt's Chairman).

Born with ambiguous genitalia and perineal hypospadias (an anomaly in male in which the urethra opens on the perineum), Aoyun came to Hong Kong in September 2009 for chromosome test and evaluation. In February, he returned to Hong Kong and received surgery for removal of all abnormally formed tissues and a first stage hypospadias repair. He will need a second stage repair in a year’s time.  (Pictured here withCOO's Chairman and urologist).

9-month-old Xinxiang was born with adrenogenital syndrome (an inherited defect in hydrocortisone) with a history of ambiguous genitalia. She undertook chromosome test to ensure that her passport reflects her chromosomal sex prior to her travel to Hong Kong and received feminizing surgeries and hormone replacement while in Hong Kong. COO’s paediatric endocrinologist worked closely with COO’s paediatric urologist before and after her surgery to ensure a safe surgery and speedy recovery. She will need long term steroid replacement with hydrocortisone.